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By Mireya Navarro
Staff Writer
Sunday, May 13, 2007
LOS ANGELES, CA - WHEN Josh Blue won NBC's "Last Comic Standing"
last season, he did so with riffs like this:
"My right arm does a lot of crazy stuff. Like the other day, I
thought someone had stolen my wallet."
It's funny only if you know that Mr. Blue has cerebral palsy.
The public image of people with disabilities has often hinged on
the heroic or the tragic. But Mr. Blue, 28, represents the broader
portrait of disability now infusing television and film. This new,
sometimes confrontational stance reflects the higher expectations
among many members of the disabled population that they be treated
as people who happen to have a disability, rather than as people
defined by disability.
"What we're seeing is less 'overcoming' and more 'just being,' "
said Lawrence Carter-Long, the director of advocacy for the
Disabilities Network of New York City, which last year started a
film series,
"disTHIS: Disability Through a Whole New Lens," celebrating
unconventional portrayals of the disabled.
"More people are saying, 'This is who I am. If you have a problem
with it, that's your problem,' "he said.
Because the entertainment media often function as a bellwether of
changing attitudes, the drive to expand beyond the stereotypes is
particularly visible on television. The heart-wrenching movie of
the week and fund-raising telethons striving for cures have given
way to amputees rock climbing on reality shows like "The Amazing
Race" and doing the jive on "Dancing With the Stars." Sitcoms and
crime shows have jumped onto the bandwagon, too: an actor who is a
paraplegic, for instance, depicts a member of the casino
surveillance team on "Las Vegas."
"It used to be that if you were disabled and on television, they'd
play soft piano music behind you," said Robert David Hall, a
double amputee who plays a coroner on "CSI." "The thing I love
about 'CSI' is that I'm just Dr. Robbins."
In film, too, tragic stories starring able-bodied actors, like
"Million Dollar Baby," are being countered by depictions featuring
the disabled themselves, from the wheelchair rugby jocks of the
2005 documentary "Murderball" to the 2005 Special Olympics romp,
"The Ringer," by Peter and Bobby Farrelly.
Hollywood's embrace of a franker depiction of disabilities is
mirrored in everyday life in trends such as the jettisoning, by
both child and adult amputees, of cosmetic covers for prosthetic
legs. Instead, prosthetics experts say, many patients wear their
legs openly, often customizing them with designs that are flaunted
like tattoos.
"Some people say, 'That's really cool' and some people don't act
very nice," said Kylee Haddad, 40, a mother of two from
Walkersville, Md., who decorates her prosthetic leg with palm
trees, fish and the American flag.
Ms. Haddad, whose right leg was amputated below the knee in 2003
after a car accident, said she has no problem wearing shorts when
she goes shopping. Neither does she shy from removing the
prosthesis in order to swim at the neighborhood pool.
She said people gawk and some have even tapped her on the shoulder
to ask her to put her leg back on. She said she's been told, "It
is upsetting my child." But she refuses to hide.
"You either accept me as I am," she said, "or you don't have to
look at it."
Jillian Weise, 25, a teacher and doctoral student at the
University of Cincinnati, released a poetry book this year to
undermine what she called "the stereotype of the disabled as
asexual" and "to try to get away from the idea of the disabled as
freak."
She titled it "The Amputee's Guide to Sex" and filled it with
deeply personal verses. "You trace the scar along my spine, and I
imagine what it must feel like," reads one poem.
Ms. Weise, who was born with a rare disease that led to the
amputation of one leg below the knee when she was 11, said that in
the United States "there's a history of don't look, don't stare,
just ignore the disability."
"I'm hoping that there's a middle ground, that this is just
another kind of difference," she said.
The hunger to be regarded like anyone else means even negative
portrayals can be welcome. When Simon Cowell of "American Idol"
teased a Special Olympics athlete with a mental disability about
his weight during this year's televised auditions, he was widely
criticized for having crossed a line. Special Olympics
International fired off an open letter. It thanked the show for
ribbing the contestant, as it does nearly everyone.
"Whether on the stage of 'American Idol' or on the field of
competition for Special Olympics, people with intellectual
disabilities don't want to be pitied," the group's statement read.
The drive for more participation is not new, but it is finding
strength in numbers. The government census and population surveys
have expanded the definition of disability over time to reflect
more conditions and impairments, including mental disabilities.
The most recent population survey, in 2002, showed the disabled
population to be the country's largest minority: 51 million, or 18
percent of all Americans. Most — 32 million — suffer from a
disability classified as severe.
Although this huge and complex group includes both the man with a
$30,000 computer-controlled prosthesis and the brain-injured woman
who is immobile, stereotyping and stigmatization are still a
problem, particularly for the mentally disabled.
And while public perceptions about the capabilities of the
mentally disabled have improved, said Dr. Stephen B. Corbin, a
senior vice president of Special Olympics International, they are
still "mixed and inadequate."
Nevertheless, the gradual gains in access to education and
independent living have allowed many disabled people to take their
place in society's mix. Surveys show that people with disabilities
are voting and going to restaurants, for example, at rates
comparable with the non-disabled. With increased access has come
visibility.
The public image of the disabled is increasingly "informed by
actual experience of disability rather than an imagined
understanding of it," said David T. Mitchell, an associate professor of disability
studies at the University of Illinois at Chicago. Mr. Mitchell,
who is also a filmmaker, uses a wheelchair because of a
neuromuscular condition. His 1995 documentary, "Vital Signs: Crip Culture Talks Back," focuses
on the concept of a cultural identity.
But, he cautioned: "We shouldn't go too congratulatory yet. Our
progress is largely a measure of the fact that we were so
regressive for so long."
The arts have become one of the most visible vehicles for
participation. In the last few years particularly, said Kari Pope,
the coordinator at the National Arts and Disability Center at the
University of California, Los Angeles, there has been more
exposure of disabled artists "getting out there" through film
festivals, dance companies, theater and the visual arts.
In Hollywood, disabled members of the Screen Actors Guild and
other entertainment groups are agitating for plots that include
more disabled characters and for the hiring of more disabled
actors to play both disabled and nondisabled roles. Though jobs
are still scarce, the quality of roles and the diversity of
characters has improved. Some disabled actors noted that they are
no longer relegated to maudlin or villainous roles.
It is a sign of the times that Marlee Matlin, a deaf actress, who
won an Oscar for the 1986 film "Children of a Lesser God," has
been playing roles as varied as a political pollster on "The West
Wing" and the love interest on "My Name Is Earl."
Meanwhile, the Farrelly brothers are at work on a pilot for a
comedy for Fox with Danny Murphy, an actor who is a quadriplegic,
in a supporting role. And NBC may produce the first comedy
starring disabled actors to air on network television. The pilot
for this show, "I'm With Stupid," is based on a BBC series of the
same name, which revolves around an apartment building designed
for the disabled whose tenants include a wheelchair user with
cerebral palsy who speaks via a voice box, and a double amputee
with high-tech leg prosthetics.
"All the actors feel this is not a television show, it's a
movement," said Wil Calhoun, the executive producer. "People will begin to
look at things in a different way."
Mr. Calhoun, who was an executive producer of "Friends," said the
comedy is an attempt to depart from the predictable, but the
material is considered risky because of concerns that viewers may
find it sad or in bad taste. On the other hand, Americans already
have been exposed to fuller portraits of disabled people,
especially through reality shows.
"The representations on reality television tend to be much higher-
stakes than the fictional narratives because that's how real
people behave," said Kathleen LeBesco, the chairwoman of
communication arts at Marymount Manhattan College.
She said that there's debate over whether some representations are
"exploitative or affirmative," but said that the depictions
parallel the trajectory that gays and racial minorities also tread
as they gained more visibility.
Sarah Reinertsen, 31, an athlete who runs with a prosthetic leg,
is a member of the hard-charging vanguard. She was a contestant on
CBS's "Amazing Race" last year (her team came in 7th of 12) and
has no qualms about competing against the able-bodied.
"Believe me, I get a thrill when I do pass two-legged people," she
said.
But she said she never leaves the house without sunglasses.
"People always stare," she said. "It's part of human nature and
it's tough to be this animal in the zoo."
But Ms. Reinertsen said people have stopped looking at disability
as "total tragedy." "People have changed a lot," she said. "They
ask, 'Are you wearing one of those cool legs?' "
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