**Build support for critical genetic nondiscrimination legislation
by contacting your senators and representatives!
GINA Introduced in the 110th Congress!
Given the rapid development of new genetic technologies,
discrimination on the basis of genetic information is a problem
that threatens to grow exponentially. Tests are currently only
available for approximately 1300 genes—genes that are associated
with relatively rare conditions. However, that small number will
soon reach the thousands. These new tests will allow for the
identification of genetic predispositions and susceptibilities to
many common health conditions. Knowledge about one’s genes has
both the potential to be invaluable to health care delivery and
the potential to be susceptible to misuse. Because no one is
exempt from this type of discrimination—each of us carries a
number of mutated genes—genetic discrimination and the related
privacy concerns should be profoundly important to each of us.
Although no laws currently exist to address the potential abuses
of this sensitive health information, the Genetic Information
Nondiscrimination Act (GINA) was introduced late Tuesday in
Congress. This legislation would prohibit discrimination on the
basis of genetic information with respect to health insurance and
employment. GINA provides strong, enforceable protections against
the misuse of genetic information—the definition of which includes
family health history—in both health insurance coverage and
employment decisions.
You can help to build support for this important bill by reaching
out to your representative and senators and asking them to
cosponsor GINA.
This is easy to do:
- Determine your representative and senators and their contact
information by entering your zip code at http://www.house.gov
and http://www.senate.gov.
- Tailor your message. You can use the sample below to get started.
- Contact your representative and senators and tell them that you
want them to cosponsor GINA. It's most effective if you do
this by phone or email.
- Email Genetic Alliance and tell them you've taken action. Email
policy@geneticalliance.org with the subject line “GINA
Cosponsor,” your name, and the names of your elected officials
to let us know that you have reached out.
Sample message:
I am writing/calling to ask you to cosponsor the Genetic
Information Nondiscrimination Act. This bill protects Americans
from the misuse of genetic information in employment and health
insurance decisions.
Many Americans forego beneficial testing due to fear that they may
be discriminated against from abuse of their genetic information.
Tell your story briefly and why you are personally concerned about
this cause.
I hope I can count on ’s support on this
important matter.
Thank you.
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