Beach Center Medicaid/HCBS statue survey
May, 2005

Beach Center seeks the input of Medicaid/HCBS consumers and their family members and circle of friends. They also seek the input of data wonks and trench workers who work with the Medicaid Waiver system from the system side on a daily basis. Recipient, family member, friend or ally in the trenches, this is your chance to express your views on the 3 core recipient concepts of the Medicaid/HCBS system.

Beach Center is investigating the connection between the core values of integration, empower/poarticipatory decision making and individualized/appropriate services and existing Medicaid/HCBS law and policy. In other words, Beach Center wants to know if the language used in the law promotes or inhibits the development of these core freedoms for the people who actually use the Medicaid/HCBS system.

Some folks completed a survey concerning the core concepts and the Medicaid/HCBS statute and the results have been tabulated, from -respondents, and determined that, in your collective judgment, there are three core concepts against which the Medicaid/HCBS statute should be evaluated.

The three core concepts are

1. Integration
2. Empowerment & Participatory Decision-Making
3. Individualized & Appropriate Services

You may be interested in the distribution of the scores across the 18 core concepts, so we attach a figure summarizing them.

RANK	CORE CONCEPT	SCORE
1	Integration	19
2	Individualized and Appropriate Services	14
3	Empowerment/Participatory Decision-Making	14
4	Liberty (physical)	12
5	Family Centered Services	11
6	Productivity and Contribution	11
7	Accountability	11
8	Autonomy	10
9	Capacity Based Services	10
10	Professional and Systems Capacity	8
11	Protection from Harm	8
12	Anti-discrimination	7
13	Family Unity and Integrity	6
14	Service Coordination and Collaboration	6
15	Classification	6
16	Privacy and Confidentiality	5
17	Prevention and Amelioration	4
18	Cultural Responsiveness	4

We hope you will now agree to join us in analyzing the federal statutes authorizing the Medicaid waiver programs according to the three core concepts and our unique Computer Assisted Policy Analysis Tool (CAPAT).

We have included, as an attachment, instructions for conducting the analysis on-line, and you may begin your analysis at any time by visiting the CAPAT website. The analysis will take 4-5 hours to complete, but can be conducted in any intervals of time as convenient. In other words, the website will save any analysis entered and allow you to come back and resume the analysis where you left off. We ask that you complete the analysis by Thursday, June 30th.

We thank you for agreeing to participate in this time-consuming process, and we hope that you will find your activities with us both informative and useful. We know that your assistance and feedback will help keep us on the right track.

If you have any questions, please feel free to contact any one of us.

Sincerely,

Rud Turnbull, (785) 864-7610, Email
Matt Stowe, (785) 864-0596, Email
David Stowe, (785) 864-3992, Email

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