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American Association of People with Disabilities
2003 Annual Report



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Mission Statement

The American Association of People with Disabilities (AAPD) is the nation’s largest cross-disability membership organization.  Its mission is to politically and economically empower the more than 56 million children and adults living with disabilities in the U.S.

Founded on the fifth anniversary of the passage of the landmark Americans with Disabilities Act (ADA), AAPD promotes public policies that advance the goals of the ADA: equality of opportunity, full participation, independent living, and economic self-sufficiency.


Message from AAPD’s Board Chairman

From an initial small group of disability rights activists who gathered together to establish AAPD in the summer of 1995, AAPD has grown to a full-time staff of ten and over 66,000 individual members, as of the end of 2003. I am delighted that during the period of January 1 to December 31, 2003, AAPD witnessed the most significant growth to date in its membership base. AAPD’s goal is to see the membership increase to more than 100,000 AAPD members in 2004, and I am confident that we will exceed this goal.

Much of AAPD’s recent membership spurt can be directly attributed to AAPD’s increase in tangible membership benefits, especially a partnership with the Digital Federal Credit Union (DCU), a non-profit financial institution committed to providing a full range of financial services to people with disabilities. The types of financial services now being offered to AAPD members through this partnership include Mobility Vehicle Loans (for adapted vehicles) and Access Loans (for any product designed to assist someone with a disability to live more independently). AAPD is particularly proud of the fact that many of its members who had previously been rejected for loans at their local banks have been extended loans through the AAPD/DCU member benefit. This is exactly the kind of economic empowerment we hoped to achieve when we founded AAPD in 1995.

AAPD continues to seek and offer other member benefits on a par with DCU. In 2004, for instance, AAPD plans to roll out a program affording its members the opportunity to enroll in a program that offers discounts on a wide range of medical, dental, prescription, visual, hearing, and travel and leisure products and services.

Andy Imparato, the AAPD staff, and my fellow board members have developed meaningful relationships with elected officials, media, corporations, and people with disabilities all over America. I am grateful to the AAPD staff for their commitment and dedication, and humbled by the support and generosity of AAPD’s many members and friends.

It is gratifying to witness growth of, and interest in, all areas of AAPD. Our unique ability to combine disability related consumerism and activism has mobilized many to join our ranks. I am honored to be serving as Chair during this exciting time. James Weisman

James Weisman
Chair AAPD Board of Directors

Message from AAPD’s President and CEO

I am delighted to share AAPD’s accomplishments in 2003, and look forward to working with all of you in 2004 and beyond as AAPD builds on its recent successes and opens new doors for its members and the broader disability community.

2003 was a year of extraordinary growth, development, outreach and milestones for AAPD - a real turning-point year. In 2003 alone,

AAPD enjoyed phenomenal growth in 2003 because of the strong partners and allies that have
invested in its success — businesses, foundations, federal agencies, individual members and donors,
and non-profit friends. They have all empowered AAPD’s talented Board of Directors, staff,
membership and volunteers to pursue AAPD’s mission of political and economic empowerment
for all people with disabilities with greater intensity than ever before.

Thank you for your support of AAPD! Together, we are making America work better for everyone.

Andrew J. Imparato
President and CEO

2003 AAPD Board of Directors

Henry Betts
Rehabilitation Institute
of Chicago Foundation

James J. Billy
Treasurer
Branch Chief,
U.S. Department of Education

Judy Brewer
Director, Web Accessibility Initiative,
World Wide Web Consortium

Judi Chamberlin
National Empowerment Center

The Honorable Tony Coelho

Richard Ellis
Director, Federal Affairs, Verizon

Marilyn Hamilton
VP Global Planning & Strategic Services, Sunrise Medical

The Honorable
Judith E. Heumann

Tim Holmes

Andrew J. Imparato
President and CEO,
American Association
of  People with Disabilities

John D. Kemp
Immediate Past-Chair
Principal, Powers, Pyles,
Sutter & Verville, P.C.

Edward Kennedy, Jr.
Marwood Group

Paul Marchard
Staff Director,
The Arc and UCP Public Policy
Collaboration

Frances Priester
Director for Consumer & Family Affairs, DC
Department of Mental Health

The Honorable Lynn Rivers

Debra Robinson
Speaking for Ourselves

Helen Roth
Vice-Chairperson

Cheryl Sensenbrenner

Robert Silverstein
Director, Center For the Study & Advancement
of Disability Policy (CSADP)

Margaret Staton
Secretary
Founder, ELA Foundation

Michael Takemura
Hewlett-Packard Company

Fred Weiner
Special Assistant to the President
for Planning, Gallaudet University

James Weisman
Chairperson
General Counsel,
United Spinal Association

Duncan Wyeth
Executive Director,
Michigan Commission
on Disability Concerns

Tony Young
Assistant Vice President,
Governmental Affairs
& Workforce Development, NISH

AAPD is
… taking a stand. The Disability Vote Project

In 2003, AAPD’s Disability Vote Project (DVP), in partnership with its 38-member coalition, focused on three goal areas:

Whereas DVP had played a key role in 2002 in the drafting, passage and implementation of the Help America Vote Act (HAVA), in 2003, DVP utilized its national network of coalition partners to help with HAVA implementation. 

With more than two-thirds of the nation’s polling places having barriers that preclude accessibility, in 2003 DVP also worked toward national polling place accessibility. 

Also in 2003,
DVP also mobilized its get-out-the-vote (GOTV) coalitions in nineteen states. 

DVP made notable progress in 2003 in the enforcement of the Motor Voter Law (NVRA). 

Lastly, DVP staff coordinated testimony provided by representatives from the national disability vote coalition, who testified before state legislative committees on topics including motor voter implementation, how to create access, and the importance of accessible voting equipment.  

2003 laid the foundation for groundbreaking work to be done by DVP in 2004, with an immediate goal of seeing a much stronger disability presence at the polls during the fall 2004 elections.  The coalition grew and DVP was able to be the catalyst for significant increased action and activities in 2003 that will be continued well into the 2004 election year and beyond.

AAPD is
… recognizing today’s disability leaders. AAPD’s Summer Internship Programs

In line with AAPD’s mission of economic empowerment for people with disabilities and its commitment to leadership development and capacity building for emerging leaders with disabilities, AAPD has established internship programs that open doors for college  and university students with disabilities, and which are already proving they can lead to long-term internship and employment prospects.

Congressional Internship Program

College students with disabilities from around the country come to Washington, DC to work as interns with members of Congress, where they get a first-hand look at the political and legislative process and network for employment prospects on Capitol Hill and Washington, DC.  To cultivate their disability advocacy, AAPD interns are also introduced to members of the Washington-area business community, legislators, and disability policy community and national disability leaders.

This program began in 2002 with two students and expanded in 2003 to seven college students from various parts of the country.  Members of Congress who hosted AAPD interns in 2003 included the first House Representative with a disability and other disability rights champions.  The program was funded by the Mitsubishi Electric America Foundation and Independence Technology, a Johnson & Johnson company.

Information Technology Internship Program

Through a major two-year grant from Microsoft Corporation, AAPD launched the Microsoft-AAPD Federal I.T. Internship program in 2003, which is designed for college students with disabilities who are pursuing careers in information technology.  In 2003, ten college students from around the country came to Washington, DC, to work alongside I.T. professionals in various federal government agencies, with their work spanning from help desk support to section 508 compliance initiatives.

Federal agencies that hosted the 2003 I.T. interns included the U.S. Department of Homeland Security, U.S. Department of Education, U.S. Department of Health and Human Services, U.S. Department of Transportation, U.S. Patent and Trademark Office, and the National Science Foundation. 

Not Just Work… 

Living together in apartment-style housing created a learning environment for the 2003  interns well beyond the experiences they were afforded on the job.  They not only learned from each other about their career paths and goals, but also about the challenges faced by people with different types of disabilities.

In addition to their placements, the Congressional and I.T. interns were invited to meet with disability advocates, I.T. professionals and the business community, including representatives from the Information Technology Industry Council, the U.S. Access Board, the World Bank, Mitsubishi Electric America Foundation and Microsoft Corporation.  While in DC, they also immersed themselves in the DC political climate by attending various AAPD-sponsored activities.  At AAPD’s July ADA anniversary celebration event on the Hill, AAPD interns were invited to sit on a panel discussing policy progress and ongoing challenges facing people with disabilities.  The panel was moderated by Al Hunt, executive Washington editor of The Wall Street Journal and panelist on CNN’s “The Capital Gang.”

AAPD’s success and experience in offering internships for college students with disabilities has led to a new partnership between AAPD and The Washington Center for Internships and Academic Seminars, to bring 50 college students with disabilities to intern in the DC-area beginning in 2004.

AAPD is
... and creating tomorrow’s leaders.

Paul G. Hearne/AAPD
Leadership Awards

To honor and continue the work of AAPD founder Paul Hearne’s goal of cultivating emerging leaders to carry on the disability movement, Paul G. Hearne/AAPD Leadership Awards are made annually at the AAPD Leadership Gala. These extraordinary inpiduals were honored in 2003; a total of 34 awards of $10,000 each have been made to date.

Albert Cheong, who lost his sight at 13, is a nationallyrecognized advocate for minorities with disabilities and for bringing the voice of Chinese people with disabilities to legislators. Claudia Gordon, the first Black Deaf female attorney in the U.S., is a skilled and passionate advocate for people with disabilities. Carrie D. Griffin is the creator of “Women Without Barriers,” a mentoring program for high school-aged girls with disabilities, and has created an online organization of lawyers and law students with disabilities. Peter Cody Hunt’s interest in working on disabilityrelated issues started when he acquired his disability in college, due to a spinal cord injury; he focuses on disability research and policy at the academic institution and federal government levels. Sarah Louise Triano has dedicated herself to promoting a culture teaching new values and beliefs and acknowledges the dignity and worth of all people, and to mentoring children with disabilities so they do not grow up ashamed of their disabilities.

Henry B. Betts Award

APD administers the Henry B. Betts Award, which was created by the Prince Charitable Trusts and the Rehabilitation Institute of Chicago (RIC) in 1989 to honor inpiduals whose work and scope of influence have significantly improved the quality of life for people with disabilities in the past and will be a force for change in the future. The award is presented collaboratively by AAPD and RIC at the AAPD Leadership Gala.

In 2003, the Henry B. Betts Award was presented to Dick and Ginny Thornburgh, longtime advocates for the rights of people with disabilities. They ultimately donated their award money to the University of Pittsburgh, to help in funding a series of lectures in disability law and policy.

AAPD is
... Mentoring

Disability Mentoring Day Program

On DMD 2003, employer mentors from the public, private and governmental sectors gave more than 6,000 students and job seekers with disabilities in all 50 states, the District of Columbia, Puerto Rico, the U.S. Virgin Islands and 15 countries the opportunity for hands-on job shadowing and career exploration.  Through DMD, which was sponsored by the U.S. Department of Labor’s Office of Disability Employment Policy and 15 national corporations, participants were able to learn from one another and create mutually-beneficial relationships.

As illustrated by these 2003 participants, DMD 2003 succeeded at:

…Exposing Students and Job Seekers to Employment Opportunities Available to Them

“DMD was a good way to learn about a particular job and the skills that are needed to be successful on the job.  I was pleased to be mentored at a bank, since I plan to work in the banking business when I complete my training.”

Anita Wehrmann, a West Virginia mentee

…Inspiring Students to Expand their Educational Goals

“I feel encouraged to continue my schooling, because DMD helped me to decide the right career path.”

A mentee from DeAnza College in San Jose, California

…persifying the pool of today’s workforce

“I am looking forward to how inpiduals with disabilities can strengthen our workforce at the hospital – this is an untapped pool of talent for us.”

Rodney Miller, CEO

Roy L. Schneider Hospital, U.S. Virgin Islands

…Paving the way for long-term mentoring relationships.

In Uinta, Wyoming, DMD started four weeks prior to the October 16 commemoration date, with the goal of enhancing mentees’ experience on DMD.  More than 50 mentees gathered weekly over a period of four weeks to participate in World of Work Boot Camp for presentations by keynote speakers addressing issues and practical strategies for enhancing career success.  In the fourth week, mentees mapped out a two-year plan.  They were then matched with mentors on October 16.

In Minnesota, DMD 2003 was held on the official commemoration date, but many events  also happened in the winter and spring months, to augment mentees’ and mentors’ experiences.

... and creating employment opportunities and insight

Providing Opportunities to Mentees

Susan Bennett, a Local Coordinator in Maryland

DMD 2003 could not have happened without the network of almost 200 volunteer local coordinators,   representing high schools and colleges, private industry, government agencies, social service providers, grassroots consumer organizations and advocacy groups.  Additionally, hundreds of organizers and thousands of mentors devoted their time, energy, and resources to making DMD 2003 a success and a program of direct benefit to the mentee participants.

AAPD is
… recognizing champions

Justice For All ADA Anniversary Event

On July 23, 2003, AAPD held its annual ADA anniversary celebration event at the Library of Congress.  The Honorable Lex Frieden, National Council on Disability Chairperson, and Deputy Under Secretary for Technology at the U.S. Department of Commerce, Benjamin Wu, provided remarks on behalf of the Administration to attendees that included members of the disability community, business leaders and policy makers.

AAPD presented its 2003 Justice for All Awards to Senate champions Senator Christopher J. Dodd, who played a pivotal role in the 2002 passage of the Help America Vote Act (HAVA), and Senator John McCain, who has been a vocal advocate for equal access to technology and civil rights for all people with all disabilities.  Renowned grassroots leaders who received 2003 Justice for All Awards were Patricia Bell Garrett, a cancer survivor and outspoken advocate of the ADA whose employment discrimination case was heard before the Supreme Court; Sue Hetrick, a leading advocate for the national disability community; and David Jayne, one of the country’s most renowned advocates for exposing and Medicare’s homebound restrictions.  AAPD also presented a Justice for All Award to Verizon’s Sr. Vice President, Public Policy & External Affairs, Thomas J. Tauke, who has helped to lead that company’s expansion of services to meet the needs of people with disabilities.

An event highlight was a panel discussion moderated by Al Hunt, executive Washington editor of The Wall Street Journal and a panelist on CNN’s “The Capital Gang,” on policy progress and the ongoing challenges to people with disabilities.  Panel members included members of the class of 2003 AAPD Congressional Interns and Microsoft-AAPD Federal IT Interns.

AAPD is
… and inspiring increased advocacy

2003 AAPD Leadership Gala

AAPD held its second-annual AAPD Leadership Gala in Washington, DC on March 6, 2003.  AAPD board member, The Honorable Tony Coelho, and AAPD board chairman John Kemp were the Masters of Ceremonies.

AAPD is proud to have this forum in which to publicly recognize emerging leaders of the national disability community and inpiduals who have demonstrated a lifetime commitment to enhancing the lives of people with disabilities.

Five extraordinary inpiduals were presented with Paul G. Hearne/AAPD Leadership Awards of $10,000 each, and the Henry B. Betts Award was presented to a couple who have committed almost thirty years to working as a couple to empower people with disabilities.

Additional honored guests and speakers included Senator Robert J. Dole, who shared insights into the life and advocacy of his close friend, Paul Hearne, a founded of AAPD and in whose name the awards program was created, and Secretary of Homeland Security Tom Ridge, who spoke about his dear friends, Dick and Ginny Thornburgh, and participated in presenting the Henry B. Betts Award to them. 

A unique highlight of the event was the appearance of renowned performer Jose Feliciano, who spoke passionately and personally about disability and performed some of this most famous works for the audience.

AAPD is
… making a difference and fostering independence

AAPD Membership and Member Benefits Program

From a small group of disability rights advocates in 1995 to an expected 100,000 plus members in 2004. That’s AAPD’s membership goal. As of the end of 2003, the AAPD  membership had reached 66,000, comprised of adults, students and children with disabilities, family members and caretakers, and disability rights leaders and advocates.

Much of AAPD’s membership growth in 2003 stemmed from its significant Member Benefits, particularly AAPD’s partnership with the Digital Federal Credit Union (DCU), which gives AAPD members the opportunity to join DCU at no cost and take advantage of a full range of financial services, most notably Mobility Vehicle Loans (for adapted vehicles) and Access Loans (for any product, device or building modification designed to assist someone with a disability).  As of the end of 2003, AAPD members had been granted loans totaling more than $25 million.

Additional member benefits include a discounted mail-order prescription program, life insurance and magazine and car rental discounts. In 2004, AAPD strives to build its membership base and to add more tangible benefits available to its members.  Toward that end, in 2003 AAPD began to design a partnership, to be launched in 2004, which will offer AAPD members a variety of affordable family healthcare and lifestyle benefits packages.

AAPD members receive AAPD’s quarterly newsletter, AAPDNews.  Every issue keeps readers informed about the latest national disability policies and issues, as well as updates of AAPD program news and announcements.

Here’s what some AAPD members say about AAPDNews:

“Thanks plus. It was wonderful. Doing a great job there!”

“AAPDNews lets me know about all the important legislation that can affect my life as a person with a disability.”

Continuing to grow its membership will help AAPD expand its newsletter and member benefits, but also to attract additional benefits providers. AAPD members generously support the organization’s programs and advocacy efforts through their membership fees, donations and volunteerism.

… by getting the word out

The AAPD Website

This is quickly becoming the place to go on the web to find continually updated news about legislative and disability policies and issues, the latest on AAPD programs and announcements, and an extensive list of categorized website links to other disability organizations and resources.

AAPD saw an explosive growth in the number of visits to its website in 2003.

AAPD members and other regular visitors to the website know that important news is posted to the AAPD site on a daily basis, while prior news is archived, and that AAPD continually adds resource links of great benefit to web browsers.   Additionally, program updates, tangible new member benefits and other announcements are immediately available in an easy-to-locate and accessible format.

Visitors to the AAPD website can also find sections detailing AAPD’s Leadership Development efforts, the annual AAPD Leadership Gala, the Disability Vote Project, Disability Mentoring Day, Membership, Advocacy activities and AAPD’s policy statements.

And lastly, AAPD’s website archives photos from all of its events, to include the annual ADA anniversary celebration events, annual Disability Mentoring Day activities nationally, the first-ever Women with Disabilities and Allies Forum in October 2003, and even the 2000 Spirit of ADA Torch Relay.  These archives illustrate AAPD’s continued commitment to disability rights activism through its highly-varied activities and programs.

Justice for All Listserv
Justice For All ( JFA) is AAPD’s email listserv for action alerts regarding legislation as well as articles of interest to the entire disability community. Its purpose is to defend and advance disability rights, to share information, and to call people to action. Through JFA, AAPD disseminates information not just about national disability policy issues, but also about the broader domestic policy and political debates that shape disability-specific priorities.

AAPD is
…advocating for disability rights.

Women with Disabilities & Allies Forum

In October 2003, AAPD held its first-ever national conference, The Women with Disabilities & Allies Forum, in partnership with the National Organization for Women (NOW) Foundation.  The three-day summit addressed issues of mutual concern to the feminist and disability rights movements and was truly the first national conference of this kind. 

With the theme of linking arms for equality and justice for all, the Forum assembled a highly perse group of women and men from across the country - and internationally - to discuss a broad range of issues, including political activism, aging and disability, the state of civil rights in the women’s and disability movements, health care, caregiving, and timely political topics like nominees to the Supreme Court, Title IX, and critical get-out-the-vote efforts.

Plenary speakers included Marca Bristo, President and CEO of Access Living; Purna Shova Chitrakar, coordinator of the Ban Landmines Campaign Nepal; Beverly Frantz, project coordinator for he National Academy for Equal Justice for People with Developmental Disabilities at Temple University; Harilyn Rousso, executive director of Disabilities Unlimited Consulting services; and Karen Thompson, president of the Home Care Chapter of Service Employees International Union (SEIU), Local 503 in Oregon.

With more than 34 workshops and plenary sessions, the Forum instilled in all attendees a need for increased discussion and cooperation, and incited them to seek solutions to the problems raised and discussed throughout the event.

The Women with Disabilities & Allies Forum received sponsorship support from the Ethel Louis Armstrong Foundation, the Landmine Survivors Network, the Maryland Developmental Disabilities Council, Oracle Corporation, and the Service Employees International Union.

2003 AAPD Major Donors

AAPD extends its most sincere gratitude to the many corporations, foundations, agencies and individuals who provided support for AAPD between January 1 and December 31, 2003. We are pleased and honored to be able to recognize AAPD’s 2003 major donors (greater than $1,000), many of whom participated in and supported more than one AAPD program in 2003 (indicated with an*). AAPD deeply appreciates their strong endorsement. 

Ability Center of Greater Toledo
Achieva
AdvaMed
Altria
Aid Association for the Blind of DC
Altria
American Airlines
American Speech Language Hearing Association
America Online, Inc.
AT&T
BellSouth Corporation
Best Buy Co.
Blistex
Bodman Foundation
Jeremiah Bogert
Marca Bristo
Bristol-Myers Squibb Company
Carnegie Corporation of America
Cassidy & Associates
Christopher Reeves Paralysis Foundation
Cingular Wireless
Citigroup Corporate & Investment Bank
Credit Union National Association, Inc.
John Culver
Brenda Curtis
Darden Restaurants, Inc.
Yoshiko Dart
Digital Federal Credit Union
The Honorable Robert J. Dole (in memory of Paul G. Hearne)
Eli Lilly & Co.
Richard Ellis
Ethel Louis Armstrong (ELA) Foundation
Gallaudet University
Genentech
Hammerman and Fisch Foundation
The Honorable Tom Harkin and Mrs. Harkin
Hart Intercivic
The Honorable Judith E. Heumann
Hewlett-Packard
Honeywell
HSBC Bank USA
IBM
Independence Technology, a Johnson & Johnson company
Indiana Governors Council
Issue Dynamics Inc.
David Johnson.
Joseph P. Kennedy, Jr. Foundation
Joukowsky Family Foundation
Kimberly-Clark Corp
Kirkpatrick & Lockhart LLP
Landmine Survivors Network
Leslie Harris & Associates
Macromedia
Manpower, Inc.
Marwood Group LLC
Maryland Developmental Disabilities Council
McDonald’s Corporation
Metropolitan Foundation
Microsoft Corporation
Milbank Foundation for Rehabilitation
Mitsubishi Electric America Foundation (MEAF)
Motion Picture Association of America
National Association of Broadcasters
NCI Information Systems
Northrop Grumman
Novartis
Oracle Corporation
Pfizer
Philanthropic Collaborative
Pitney Bowes
Powers, Pyles, Sutter & Verville
Prince Charitable Trusts
Recording Industry Association of America
Rehabilitation Institute of Chicago
SAP
SBC Communications
Sequoia Voting Systems
Service Employees International Union
Seth Sprague Educational and Charitable Foundation
Shefa Fund
Sodexho
Sprint
Margaret Staton
SunTrust
Trellis Fund
U.S. Cellular
U.S. Department of Labor's Office of Disability Employment Policy (ODEP)
United Technologies Corp.
Verizon
Verizon Foundation
Vivendi Universal
Walt Disney Company
Wisconsin Energy Corp.

Financial Information
January 1 - December 31, 2003

Statement of Activities and Changes in Net Assets

Revenues and Public Support

Membership Fees $127,005
Contributions $10,378
Contributions In-Kind $20,481
Program Revenue $55,317
Foundation Grants $1,254,791
Government Grants $98,724
Other Income $6,254
Total Public Support and Revenue $1,572,950

Expenses

Program Services $1,454,793
Supporting Expenses $297,900
Total Expenses $1,752,693

Change in Net Assets (179,743)
Net Assets, Beginning of Year $586,822
Net Assets, End of Year $407,079

Statement of Financial Position
Current Assets and Equipment

Cash and Cash Equivalents $150,051
Accounts Receivable $162,740
Unconditional Promises to Give $176,100
Prepaid Expenses $ 14,606
Fixed Assets $ 36,470
Deposits $ 8,068
Total Assets $548,035

Liabilities and Net Assets

Current Liabilities $140,956
Net Assets/Unrestricted $199,500
Net Assets/Temporarily Restricted $207,579
Total Liabilities and Net Assets $548,035

AAPD
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