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Dear Dr. Phil—Nothing about us without us!

May 23, 2012  |  Lara Schwartz

Here’s one for you debaters out there:


Make a case that you have value.  Make a case that whatever hardship you caused in your family’s life—as a colicky baby, an obnoxious middle schooler, know-it-all college sophomore-you were worth it.  Make a case that whatever gifts you bring to your community are enough to earn you a place there.

What did you come up with? 

If you’re like me, you’d probably answer this challenge by saying “no way! Nobody should have to make that case.”

Fair enough.  But indulge me another moment:  Now imagine that this same debate was going on without you in the room—and your life depended on the outcome.

No, I’m not trying to ride the Hunger Games coattails into a book contract.  I’m describing an episode of the “Dr. Phil” show.  The show, which aired April 13, provided a major platform (the Dr. Phil show has over four million viewers) to argue that a Canadian woman has a right to euthanize her two adult children, both of whom have a condition called Sanfilippo Syndrome. 

The show presented the mother’s case for ending two lives, backed up guests who appeared to support her. 

Yet again, this is another example of people with disabilities being left out of the conversation- especially when it comes to conversations about disability rights. "Nothing about us without us."

AAPD, along with national, state, and local disability rights organizations, has signed on to the following letter to Dr. Phil.  We encourage you to weigh in with his show as well.

----
Dr. Phil McGraw
Dr. Phil Show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
 
Dear Dr. Phil:
 
The undersigned organizations are sending this letter in response to the April 13, 2012 segment of the Dr. Phil Show which presented the idea that parents should be able to euthanize their children who have intellectual disabilities. This outrageous proposal was portrayed in such an extremely unbalanced manner as to amount to a promotion of such a deadly proposition.
 
The show centered on Annette Corriveau, who has two adult children who have a progressive genetic condition called Sanfilippo syndrome. The show opened with a brief introduction of Corriveau, followed by an interview of her conducted by one of the producers. Over the course of the opening which took more than half of the segment, viewers were shown and/or told the following:

• Video of Corriveau's two children from typical childhood to recent pictures as adults with disabilities;
• Depiction of intellectual and physical disabilities developed as a result of the condition;
• Discussion of the changes in their appearance as they got older, implying that their “not normal” appearance is tragic;
• The fact that Corriveau institutionalized both children when they were young; and
• Video of one of Corriveau’s visits: she reported visiting them every two months, but doesn't touch them, because they don't react to her.

Nothing about other aspects of the lives of Corriveau’s adult children is presented, such as whether or not they react to staff people they see every day. After the opening, Dr. Phil, you engaged in dialogue with Corriveau, admitted not knowing what the two adults would want but also said that you wouldn't want to live "like that."
 
The second guest in the segment was attorney Geoffrey Fieger, who defended Jack Kevorkian, the assisted suicide and euthanasia advocate who claimed to have assisted the deaths of about 130 people. According to the New England Journal of Medicine, over two-thirds of Kevorkian’s victims were people with disabilities who were not terminally ill. During this recent segment, Fieger argued that a health care guardian’s right to consent to or refuse medical treatment should be extended to include active euthanasia such as a lethal injection. He asserted that what Corriveau wants is perfectly reasonable and merciful and that existing law against this is stupid.
 
The third 'guest' was a woman identified only by her first name - 'Ruthi' - who was described as having four birth children and three step children, three of whom were described as having “special needs.” Ruthi spoke from the audience, rather than on stage like Ms. Corriveau. There were no videos of Ruthi’s children. She was appalled at the idea of killing people with intellectual disabilities, but was given no more than a minute to speak.
 
Finally, Dr. Phil, you asked for a show of hands from the audience – how many agree that Corriveau should be able to “mercifully” kill her kids? It should be no surprise that an audience who sat through such a one-sided presentation would vote about 90% in favor of Corriveau and her desire to euthanize her two adult children.
 
Every show is followed online by a feature called "Dr. Phil Uncensored." The one for the show "Deadly Consequences" features you and your staff expressing surprise over the audience vote and congratulating yourselves that "all the arguments were brought to the table" and that "we got both sides out". Nothing could be further from the truth.
 
This program was a horrific assault on people with intellectual and developmental disabilities. By conveying social acceptance and approval of active euthanasia of individuals with disabilities by their family members, the segment threatens their very lives. People with disabilities are reportedly twice as likely to be abused as their nondisabled peers. It is grossly irresponsible that the Dr. Phil Show aired a segment that further promotes any form of violence against a group already subject to discrimination, ridicule and gross devaluation. The idea that people with disabilities are “better off dead” is deeply offensive and cannot be tolerated.
 
The undersigned call upon you and the Dr. Phil Show to publicly apologize for the “Deadly Consequences” segment and to give equal time to individuals with intellectual disabilities and organizations advocating their equal rights. We also call upon the Dr. Phil Show’s sponsors to become part of the solution by joining us in this demand.
 
Sincerely,
(All of us!)


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Comments

Submitted by John Eusebio at 07:44 PM on January 23, 2013
I am disgusted and frankly ashamed. I was never a big fan of Phil (frankly, I think he's one of the most unprofessional charlatans on TV), but this is a new low. My sister (not by blood-just especially close friends) stands at 3'8". She was born with a brittle bone disease. She's broken her legs more about as often as people have dental check-ups. She has scars on her legs, uses a wheelchair to get around long distances, has a cured spine. She's had to learn to walk MANY times over because of her injuries. She's wanted to die. But her mother and family kept her going. She's an inspiration to me. How dare anyone simply say that "they wouldn't want to live like that". Disgusting. Not many people want to be disabled. Or break their legs all the time. But you know what? That doesn't devalue their worth as human beings. Further, many people have suffered and wanted to die, but endured. Years later they are grateful for their lives, even if restricted. This is pathetic, and Dr. Phil should be ashamed.
Submitted by Andrea at 03:47 PM on June 7, 2012
Dr. Phil is a opportunistic fraud. His show should be cancelled. He is a moron. Thank you.
Submitted by Frannie at 08:53 PM on May 25, 2012
SHAME on them!
Submitted by Cathy at 11:25 AM on May 25, 2012
One of the few groups it still seems politically correct to hate.
Submitted by Daniel at 05:44 AM on May 25, 2012
Dr Phil is an opportunist and that show just made my skin crawl... For someone who pretends to be so managomous, he is disgustingly privileged.
Submitted by Benjamin at 11:35 PM on May 24, 2012
I would say from reading the whole thing it's like saying that We should allow another Dr. Kevorkian to come into the picture which society was trying to get rid of. And I think that it was VERY unbalanced. I am disabled and I think that it is a just thing if I am left out of a decision making process about what I should or shouldn't be doing and I am a very intelligent human being. Those of us that are disabled even though we can't verbalize a whole lot of stuff still understand somewhat of what's going on.
Submitted by AF at 05:41 PM on May 24, 2012
As a teacher of gifted students I attest that people of all abilities have value! Other abled people teach us compassion and give us insight and perspective on the world in which we live
Submitted by Anonymous at 02:11 PM on May 24, 2012
Im stunned.
Submitted by Suzanne at 12:12 PM on May 24, 2012
It is dangerous when a society allows a person to decide that another person's life is without value. Dr.Phil should not have associated himself with this cheap "entertainment." He should get to work in the disability rights movement and get his credibility back. The sponsors of his program must not sanction this behavior. I agree that the aapd and other disability rights organization should consider getting an online petition together. Also, the shows sponsors need to be listed so that they can be contacted.
Submitted by Martha at 09:54 AM on May 24, 2012
What a biased, appalling picture painted by this program. I know many developmentally disabled people who others would have given up on who are now living happy, productive lives that THEY are steering! And they have much to teach us. Shame on you, Dr. Phil!!!
Submitted by Angie at 09:40 AM on May 24, 2012
I'm not often speechless, but this is enough to leave me speechless. I am, however, reminded of another person who thought this was okay. His name was Hitler. Who is next on your list, Dr Phil Hitler????
Submitted by Putting the Pieces Together at 09:29 AM on May 24, 2012
I have every different need in my org perhaps he should do a show on the wonderful things my children and adults are doing and accomplishing. We have 250 families in our org. i am sickened by this!!! I will never watch Dr Phil again!
Submitted by Legal Advocate at 08:58 AM on May 24, 2012
Perhaps people in the "non-disabled community", including those in the audience, could have more balanced perspective if they were informed about the history of people with disabilities. A suggestion for Dr. Phil-- present a show about the people tagged with the label of mental retardation--or, if you prefer, cognitive, intellectual, or developmental disability--have been major targets of social prejudice and discrimination in Western societies. Forced segregation, state sanctioned abuse and dehumanization, status degradation and public mortification, involuntary sterilization, denial of fundamental rights, and even euthanasia occupy prominent roles in the history of mental retardation. Come on Dr. Phil--SPEAK UP!!! In the words of Pastor Martin Niemoller: First they came for the Socialists, and I did not speak out-- Because I was not a Socialist. Then they came for the Trade Unionists, and I did not speak out-- Because I was not a Trade Unionist. Then they came for the Jews, and I did not speak out-- Because I was not a Jew. Then they came for me--and there was no one left to speak for me.
Submitted by Kell from Australia at 11:24 PM on May 23, 2012
The biggest mistake, I think, that some sections of "normal" society makes when assessing the quality of life of people with disabilities is that they tend to judge based on their own quality of life as "normal" people. This view of what constitutes quality of life is very skewed in my book. Just because a person can not do many, or sometimes any, of the things that a "normal" person can does not necessarily mean that they have any less quality of life, it is simply a very different quality of life. Society as a whole needs to start looking from a different view, one that acknowledges that there can be very different measures for what constitutes a persons quality of life that are drawn from people in similar circumstances and of similar abilities rather than what is currently considered to be "normal". I am not against voluntary euthanasia, and indeed if the time comes would like to think that it would be an option available to me should I choose to take it. I do how ever strongly believe that it should not be imposed upon someone without their direct consent or request.
Submitted by Naomi from Australia at 10:47 PM on May 23, 2012
As a mum of three gorgeous children who happen to have special needs I am apauled that someone thinks killing people just cause they have disabilities is just horrendous.I understand that for some they cannot parent their special children..but there are plenty of people out there who see the uniqueness and gift these people show the world.Im offended and upset that this mother is so selfish..all people have rights and just cause one person thinks they do not have quality of life it is not always the case....and who are you to know grrrrr.Shame on you
Submitted by Joanne at 08:02 PM on May 23, 2012
I am a fan of Dr. Phil and I haven't seen this episode, however, I can't believe that AAPD would suggest that these stands were taken if it weren't true. I know ratings can be bad at times, but let's not attract the bottom feeders and promote killing!
Submitted by kingzrule2 at 05:57 PM on May 23, 2012
This is a human rights issue and noone should be allowed to decide on the value of a person's life. Why does she only see her children once every 2 months? It sounds like she has already "killed" them in her life but doesn't respect their right to experience life with the abilities they have. Dr. Phil missed the important debate and discussion here and it is irresponsible for him to not respond to this misstep.
Submitted by t- at 05:29 PM on May 23, 2012
This is a great letter. This would also be a great issue for an on-line petition (coming from AAPD would strengthen the message, I think)
Submitted by Jats at 05:15 PM on May 23, 2012
this is very very wrong.It has taken her children to get to be a adult and now she dosent want them.
Submitted by Trecia at 04:37 PM on May 23, 2012
It is easy to sit on a stage and make judgement what you would or wouldn't do. I am a mother with an adult daughter with a disability and yes I get tired! But not what you think. I get tired of people casting judgement on the value of human life just because they do not have the Barbie/Ken doll appearance. Have you ever considered that people with disabilities are great teachers. I have learned more about love, generosity, empathy and forgivness from my daughter than going to church ever has. Lest you forget the first people killed by the Nazis were people with disabilities. I believe that is a dangerous slope!

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