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You have a lot at stake

December 6, 2012  |  David Heymsfeld

People with disabilities have much at stake in the on-going efforts to reduce the deficit in the federal budget.  Deficit reduction threatens to reduce vital government services that give many people with disabilities the opportunity to live healthy, independent, and productive lives in their communities.

Medicaid is of great importance to our community.  Medicaid now serves as a lifeline for more than 8 million people with disabilities, giving them the health care and long-term services and supports they need. 

  • For people with a variety of physical disabilities- such as spinal cord injuries, traumatic brain injuries, cerebral palsy, or amputations- Medicaid provides access to wheelchairs, prosthetic devices, and assistive technology.
  • For people with epilepsy, mental illness, HIV, and a variety of other conditions Medicaid is often the only source of access to essential prescription drug coverage.
  • For many people with cognitive and other disabilities, Medicaid is an important source of long-term services and supports, which are tools that enable them to live and work in the community and to avoid costly, segregated nursing homes and institutions.
  • For children with disabilities, Medicaid provides access to the Early and Periodic Screening Diagnosis and Treatment benefit, which requires screening for and treatment of developmental, vision, dental, mental health, and other medical problems.

In deficit reduction talks, cuts in entitlement programs such as Medicaid are on the table.  There have been “block grant” and “per capita” proposals that would make substantial cuts in Medicaid funding over the next ten years.

These proposals are of great concern, because they cut funding without making reforms that would increase the efficiency of the program.  Medicaid already provides services at a lower cost per beneficiary than private insurance.  Merely waiving a magic wand of arbitrary limits on spending will not reduce the costs of the needed services Medicaid provides.  The needs will remain.  The inevitable result of spending cuts, not based on reforms that add efficiencies, will be a reduction in the number of people served by Medicaid or the services they receive.

There are opportunities to make reforms that will make the program more efficient and less costly.  One promising approach is to continue to reduce the number of persons receiving long-term care and services in institutions, instead providing these services in less costly home or community-based settings.  People with disabilities welcome opportunity to live and work in their communities.

In addition to Medicaid, people with disabilities are concerned with proposals to impose across-the-board cuts that would reduce the funds for important programs that help people with disabilities live and work in their communities.  These include programs providing assistance in employment, education, housing, and transportation.  These programs have already been subject to the major cuts that were imposed by the across-the-board reductions in the 2011 deficit reduction package.  Further cuts would impair services substantially.

Finally, there are concerns with ensuring that there is a balanced approach to deficit reduction.  A position letter from the Consortium for Citizens with Disabilities (a coalition of more than 100 organizations) states that “deficit reduction strategies must reflect a thoughtful, balanced approach and include all aspects of the federal budget in order to protect people with disabilities.”  On this point, Mark Perriello, AAPD President & CEO believes:

“Any common sense solution needs to prioritize the needs of the most vulnerable Americans.  We should not cut benefits to millions of Americans and deprive them of health care and community supports, to facilitate tax breaks to those who don’t want to pay their fair share. Making cuts to benefits is not the answer.

We must not make cuts in spending that would reduce services to Americans with disabilities and we cannot accept a solution that prioritizes tax cuts over the health of millions of individuals.”

 The disability community will be actively involved in the debate over deficit reduction to help ensure that the solutions developed do not do serious harm to our most vulnerable citizens. Contact your Representative and Senators and tell them to preserve Medicaid.

 

 

             


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Submitted by Maricee at 02:25 PM on December 13, 2012
I worked for a center of independent living an d each year it gets harder and harder for them to survive.The services they offer are awesome. Also, I have a disabled 30 yr. old son. He is very fortuate and lives an independent life throughh the Hope House foundation. I will contact any my senators to keep these sevices intact.
Submitted by Mazza at 12:07 PM on December 9, 2012
I do not personally need Medicaid but there are so many who do, it's a matter of the public interest and of the public health.
Submitted by kakkie at 01:07 PM on December 8, 2012
It is unthinkable that our government would cut assistance for vulnerable citizens rather than ask the BILLIONAIRES in our country to pay their fair share of taxes!!!
Submitted by Anonymous at 05:58 AM on December 8, 2012
I have a 93 year old mother (NOT on Medicaid) and two sisters who have significant disabilities who all live with me. My sisters ARE on Medicaid. One sister is 55 years old, deaf-blind from congenital rubella. Her services are funded by a Medicaid waiver. My other sister is 53 and has multiple disabilities including cerebral palsy and speciFic learning disabiliTies. She has recently had surgery to her replace her knee and straighten her leg. She receives miNimal supportive services and she is receiving intensive physical therapy to propel her back toward the supported (by me and her mother) independence she aspires to. Meanwhile, she recuperates and rehabilitates, she continues to be helpful with our deaf-blind sister and with our mother. We all help to support and sustain each other. Medicaid reductions in our situation would likely result in ALL THREE OF THEM Being institutionalized because without my sisters' Medicaid benefits I would not be able to take care of them all.
Submitted by JoAnn at 11:34 PM on December 7, 2012
Medicaid is of critical importance to middle class Americans of all ages, for it is the ONLY Long Term Care "insurance" the majority of U.S. citizens have. Medicare does NOT provide for Long Term Care. People with disAbilities ordinarily are NOT approved by private insurance companies for LTC even if they can afford it; & most PwDs & elderly can't afford private LTC insurance.
Submitted by more from DC M at 09:13 PM on December 7, 2012
If cuts must occur what would the future savings be if not effecting those covered now, but if children couldn't get parents SSDI, but went on ssi? (but change restrictive SSI income limits to make it more possible to get an edu and to work) ALSO Would there be savings but no harm if those with MH issues only or don't need physical in house or in school accessibility on ssdi got medicaid, not medicare? Could states instead of shutting down hospitals repurpose them with open housing /rooms where people if able can leave and return since there isn't yet enough accessible or affordable housing built? Why not have accessible housing wings on all State school campuses and help students be more able, maybe even if there is a med school have people with disability able to access some specialist care on campus? When I asked to use section8 in on campus housing State Voc Rehab and the university people looked at me like I was a Martian- but it makes good sense for better access. IT WONT BE GOOD, BUT IF WE HAVE TO CHOOSE, WHAT CHANGES AND CUTS WILL DO THE LEAST HARM?
Submitted by DC M at 08:42 PM on December 7, 2012
Medicaid and other supports could help more of us get through school and to work and off the dole, but there isn't enough focus on SSI medicaid or understanding that we don't have the access even people on SSDI/Medicare have. It would be great if college students w disabilities (in graded classes) could have Medicare access and less restrictive income rules. In CA, we have already lost dental and eye care and other pain care despite that periodontal disease causes heart disease and you need glasses to drive and go to school and do most daily living safely, and that more pain = less ability. If "Obama Care" allows families to insure their children to age 26 can't there be a tax incentive to families remove many of these folks from the system ? Can schools provide some primary care via private insurance and medi medi, sharing those costs? Wouldn't this save parents from taking time off work for some of the basic care too? There have got to be other ideas out there that would to allow us to provide all the needed services, but at lower costs. It's a shame there is not yet adequate affordable or accessible housing and since most shelter and helps are for healthy families, not special needs people with disabilities, many of those not being helped by Olmstead are in the road or other precarious situations. I would ask Congress and the POTUS to look to support designing more accessible affordable with or without subsidy . If people who earn 60K per year can get and need housing assistance something is wrong with supply not considering demand and we need a more free housing market. I bet there are more people like me who could design small much more affordable but accessible and livable homes and multifamily units if given the supports to be able. Hiring returning vets to do OJT to help build them and putting contractors to work would do much to jump start the economy at the same time.
Submitted by Anonymous at 07:21 PM on December 7, 2012
Protect our rights as per the law!

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