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January 1, 2014

March 1, 2013  |  Henry Claypool

Under the new health care law, important changes to the private health insurance markets are taking effect. Until now, insurance companies have been able to deny coverage based on pre-existing conditions or disability, which has barred many of us from either purchasing health coverage or fully using the insurance we have purchased.  The new law already bans insurers from denying health care to young people under age 19, based on a pre-existing condition.  In January 2014-about 10 months from now -the Affordable Care Act (ACA) extends its protections to all Americans. This change is long overdue. A quarter of a century ago, as the Americans with Disabilities Act (ADA) was being debated, advocates argued for a similar provision to be included, but Congress refused to include it. Even with the horrific stories of hardship, endured by individuals and families unable to secure health care insurance at any price, the insurance industry successfully kept these changes out of the ADA.  Thankfully, in 2014, this form of discrimination will be part of America’s past.

Barriers to adequate, affordable health coverage created steep barriers to employment for millions of workers with disabilities and parents of children with disabilities and chronic conditions, as well.  Businesses have been wary to hire those who may drive up insurance costs.  Furthermore, because people with pre-existing conditions or disabilities are often denied health care insurance from private insurance companies, they have had to look to Medicare and Medicaid for coverage. While these are important programs, that provide critical health care to those in need, the consequence of forcing people into public health care programs has undermined the economic health and well-being of many Americans with disabilities and their families. 

The eligibility requirements for Medicare and Medicaid are linked to Social Security’s definition of disability, which requires an individual to limit the amount of money they make to roughly $1,000 per month. While there is little information available on how many Americans forgo earnings from work, just to maintain their Medicare or Medicaid eligibility, we do know that there are many that do so; effectively being forced to choose between health care and employment. When President Clinton called on Congress to enact the Ticket to Work Act, he spoke a preeminent truth, “No one should have to choose between keeping health care and taking a job.”

It is time to make that truth come alive, by making certain our community understands that the ability to deny someone access to health insurance based on disability or pre-existing condition ends on January 1, 2014.


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Submitted by Anonymous at 08:52 AM on April 11, 2013
I have two son's. one is 24 and has fallen off of TRICARE, remains on blue cross however. My eldest, who has qualified for SSI ( age 25 ) remains on blue cross ( federal employee program ) and has been extended on Tricare but is up for a review. My comment is that we have experienced many forms of care over the years for our sons. The most effective care has been provided by our insurances. Paying for Cadillac Insurance has provided my eldest son choice in providers which in turn has provided the best care possible which in turn creates the best outcome. When on SSI Medicaid stepped in and what they had to offer for the many health issues my son has was and is totally lacking and logistically irrational. I fear that the loss of premium care, that my husband and I have sacrificed to provide for him will be whittled away. Medicaid and the large entity it is does not provide coverage for individualized services for those that have a variety of different health needs.
Submitted by April at 10:07 AM on March 15, 2013
I have met people who are in this quandary forced upon us by the corporate insurance industry. So glad this will gone with the New Year. We'll really have something to celebrate.
Submitted by Gary Arnold at 12:32 PM on March 6, 2013
A colleague of mine had a brother with a disability who did free lance work. He was denied private insurance and did not qualify for Medicaid. He ended up dying from what appeared to be a very treatable case of sleep apnea. Looking forward to 2014 and implementation of Affordable Care Act
Submitted by Anonymous at 10:15 AM on March 5, 2013
aunty*1- Your daughter can stay on your husband's insurance until age 26, under the new Affordable Care Act. I am around your daughters age and have been able to keep my Dad's insurance because of this new law.
Submitted by D Fitz at 10:11 AM on March 5, 2013
@ aunty*1 I appears that your daughter can keep insurance: Check out this page : http://www.dol.gov/ebsa/faqs/faq-dependentcoverage.html
Submitted by aunty*1 at 08:38 AM on March 5, 2013
My daughter is turning 21, and very nervous about it... do you know if there is a law or clause to keep my daughter with a regular insurance trought my husband's work insurance. Thanks for this postings.. :)
Submitted by D Fitz at 11:26 AM on March 4, 2013
I'm excited for this to take affect. My only questions is, will insurance companies be able to charge more for people with pre-exiting conditions? I haven't heard anything about a cap on premiums yet.
Submitted by Delia at 08:00 PM on March 2, 2013
We need a more fair system for our disable family members. January 1, 2014 should give them hope for a better tomorrow.

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