Principles and Policy Priorities
Principle 1: Community Integration
People with disabilities have the right to live independently in the community in the most integrated setting of their choice.
Community Integration policy priorities:
- AAPD will advocate for policies that ensure people with disabilities have access to affordable home and community based long-term services and supports that enable people to be integrated into the community, including the expansion of the availability of home and community based services to end the institutional bias in the Medicaid program;
- AAPD will advocate for policies to ensure people with disabilities have access to affordable accessible housing, including non-provider owned scattered site housing, and will advocate against the use of institutional or congregate “clustered” models that segregate people with disabilities from their communities;
- AAPD will advocate for policies that ensure that people with disabilities have access to accessible and affordable transportation; and
- AAPD will advocate for policies that promote the development of universally designed technology, and that ensure affordable access to that technology, to support people with disabilities to live independently.
Principle 2: Equal Opportunity and Economic Self-Sufficiency
People with disabilities have the right to equal opportunity, to be economically self-sufficient, and to earn and save without jeopardizing access to the services and supports that allow them to live and work independently.
Equal Opportunity and Economic Self-Sufficiency policy priorities:
- AAPD will advocate for policies that support individuals with disabilities to work in integrated competitive settings in which they are paid competitive wages and for policies that end segregated subminimum wage work;
- AAPD will advocate for policies that provide individuals with disabilities the opportunities to earn and save without losing access to services and supports through expansion of employment based services, including supported and customized employment, and improving Medicaid Buy In and other Medicaid options that provide access to home and community based services;
- AAPD will advocate for policies that improve and enhance inclusive workplaces in both the public and private sectors; and
- AAPD will advocate for policies that provide young people with disabilities opportunities to achieve economic independence, including through education, internships, and mentoring.
Principle 3: Equal Rights and Political Participation
Discrimination against people with disabilities that produces barriers to community integration, independent living, equal opportunity, economic self-sufficiency, and political and civic participation must be eliminated. Strong civil rights laws and enforcement of those laws are essential to ending discrimination.
Equal Rights and Political Participation policy priorities:
- AAPD will advocate for strong enforcement of the Americans with Disabilities Act, the Rehabilitation Act, and other laws that guarantee the rights and full participation of people with disabilities and for improvements in those laws when necessary;
- AAPD will advocate for policies that allow people with disabilities to fully participate in the political process, including ensuring the accessibility of polling locations and through promoting the availability of accessible voting technology; and
- AAPD will promote the ideals of the Americans with Disabilities Act around the world to increase the ability of individuals with disabilities to travel, work, and live abroad.
Principle 4: People with disabilities have a right to Quality, Comprehensive, Affordable Health Care
Health Care policy priorities:
- AAPD will advocate for policies that ensure people with disabilities have access to quality, affordable, and comprehensive health care;
- AAPD will advocate for policies that ensure that individuals with disabilities have control over their health care decisions through the promotion of individual choice, person centered planning, and consumer self-direction; and
- AAPD will advocate for policies that ensure the accessibility of health care facilities and medical devices and equipment.
2019 Action Alerts
- Action Alert: Ask Congress to Sign-on as Original Cosponsors to Bills Protecting the Rights of Disaster-Impacted People with Disabilities! – June 13, 2019
- Action Alert: Equal Pay For PWD – June 10, 2019
- Action Alert: Raise the Wage Bill National Call-In Day, March 26! – March 25, 2019
- Action Alert: Raise the Wage Bill National Call-In Day, March 26! – March 25, 2019
- Action Alert: National Call-In Day to Support the EMPOWER Care Act on Wednesday, March 6th! – March 5, 2019
- Urgent Action Alert: Disability Integration Act Co-Sponsors Needed! – March 4, 2019
2019 Sign-On Letters
- Civil Rights Principles for Health Reform. (7/25/2019). The Health Care Task Force of The Leadership Conference on Civil and Human Rights has developed the following principles to guide any next steps taken to improve access to health care for all and the health care system, noting that addressing health inequities is inextricably linked to ensuring coverage for all.
- Self-advocates on the Interagency Autism. (7/11/2019). AAPD joins the Arc, ASAN, and ANCOR to support the greater inclusion of people with autism themselves in the current text of the Autism CARES Act reauthorization (H.R.1058/S.427).
- Florida Governor Letter with Signatories. (7/8/2019). AAPD joins a coalition of 32 education, disability, privacy, and civil rights advocacy groups writing to highlight substantial risks arising from Florida’s proposed school safety database.
- Principles for Value Assessment. (6/24/2019). Value Our Health supports assessing the value of any treatment using tools that are consistent with the goals of personalized, patient-centered medicine and do not discriminate against people based on age and/or with disabilities, chronic conditions, and diseases.
- OMB Poverty Measure Proposal. (6/21/2019). AAPD joins CCD in comments on the consumer inflation measures produced by federal statistical agencies.
- Letter to NJ Governor on Deaths at Wanaque Center. (6/19/2019). The New Jersey Department of Health proposed new regulations in response to the adenovirus outbreak at the Wanaque Center that claimed the lives of eleven children last fall. AAPD has joined ASAN with a coalition of organizations to demand that the government of New Jersey investigate the neglect at Wanaque and implement enforceable, significant policy changes that reflect the gravity of these deaths.
- Protecting Older Workers Against Discrimination Act, H.R. 1230. (6/11/2019). POWADA is bipartisan, limited legislation to restore fairness and well-established legal standards on workplace discrimination that were undermined by certain court decisions. We urge all Committee Members to vote to support H.R. 1230.
- CCD letter to the ACL Administrator regarding concerns about the proposed reorganization. (6/11/2019). The undersigned members of the Consortium for Citizens with Disabilities (CCD) write to express our
concern over the Notice Statement on the reorganization of the Administration for Community Living (ACL) published in the Federal Register on May 9.
- Bonamici, Bucshon, Schrier, McMorris Rodgers Introduce Legislation to Help Students with Disabilities Access Support Services (6/6/2019). Representatives Suzanne Bonamici (D-OR), Larry Bucshon, M.D. (R-IN), Kim Schrier, M.D. (D-WA), and Cathy McMorris Rodgers (R-WA) introduced legislation to streamline the process for college students with disabilities to access needed support services.
- CCD Statement on Paid Family and Medical Leave (5/22/2019). AAPD joined the Consortium for Citizens with Disabilities (“CCD”) in a statement on paid family and medical leave.
- HAB Coalition Comments on Sale of Insurance Across State Lines (5/6/2019)
AAPD joined the Habilitation Benefits Coalition (“HAB”) in commenting on the Centers for Medicare and Medicaid Services (“CMS”) request for information regarding the sale of individual health insurance across state lines.
- CPR Comments on Sale of Insurance Across State Lines (5/6/2019)
AAPD joined the Coalition to Preserve Rehabilitation (“CPR”) in commenting on the Centers for Medicare and Medicaid Services (“CMS”) request for information regarding the sale of individual health insurance across state lines.
- Person Centered Planning Committee and National Quality Forum (5/2/2019)
AAPD joined several organizations in addressing the lack of accurate representation at the Person Centered Planning and Practice Committee (PCPPC) convened by the National Quality Forum. This letter has been sent to relevant congressional appropriations staff.
- 2020 IDEA Part B funding Group letter (4/19/2019)
AAPD joined the PACER Center and 46 other groups in signing onto the letter of in support of a $1.7 billion increase in IDEA Part B Grants to States funding over FY2019, in order to put us on the path to achieve full funding of IDEA. This letter has been sent to relevant congressional appropriations staff.
- AAPD SNAP Comments (4/2/2019)
AAPD submitted the following comments on the U.S. Department of Agriculture (USDA) proposed rule, “Supplemental Nutrition Assistance Program: Requirements for Able-Bodied Adults Without Dependents.”
- CCD SNAP NPRM Comments (4/2/2019)
The undersigned members of the Consortium for Citizens with Disabilities (CCD) submit the following comments on the U.S. Department of Agriculture (USDA) proposed rule, “Supplemental Nutrition Assistance Program: Requirements for Able-Bodied Adults Without Dependents,” (RIN 0584–AE57, 84 Fed. Reg. 980, published February 1, 2019).
- The State of Texas v. The United States (4/2/2019)
AAPD served as amicus curiae in The State of Texas v The US. The case challenges the 5th Circuit, Judge Reed O’Connor’s, ruling that strikes down the Affordable Care Act in its entirety.
- The Parent/Professional Advocacy League v. City of Springfield (3/28/2019)
AAPD served as amicus curiae in The Parent/Professional Advocacy League v. City of Springfield. The case challenges the City of Springfield’s failure to provide needed services to children with mental health disabilities in their neighborhood schools.
- CCD Disability Principles for Health Care Reform (3/27/2019)
AAPD joined other coalition members of the Consortium for Citizen with Disabilities (CCD) to issue updated principles for health care reform efforts.
- Principles for School Safety, Privacy, and Equity (3/27/2019)
AAPD joined 39 other education, policy, disability rights, and civil rights organizations to release ten principles to protect all students’ safety, privacy, and right to an equal education.
- Disability Rights Statement On The Deaths At Wanaque Center for Nursing and Rehabilitation (3/21/2019)
AAPD joined a letter calling for action in the wake of the deaths of eleven children at the Wanaque Center in New Jersey.
- Letter Urging the FDA to Issue A Complete, Immediate Ban of the Use of Electrical Stimulation Devices (3/6/2019)
AAPD joined a letter urging the U.S. Food and Drug Administration to issue a final rule that includes a complete, immediate ban of the use of electrical stimulation devices (ESDs) for behavior modification.
- Letter Opposing Section 3 of the Enhanced Background Checks Act of 2019 (2/27/2019)
AAPD joined a letter in opposition to Section 3 of H.R. 1112, “Enhanced Background Checks Act of 2019.
- Letter Supporting the Keeping All Students Safe Act (2/25/2019)
AAPD joined a letter supporting the Keeping All Students Safe Act (KASSA), which is designed to protect school children from seclusion and unnecessary use of restraint and to help states provide districts with resources and training for school personnel.
- Letter Opposing Discriminatory QALYs in New York (2/22/2019)
AAPD joined a letter opposing the use of third party value assessments, especially those relying on quality-adjusted-life-years (QALYs) and similar metrics, as the basis for denying or restricting access to care in the State of New York.
- Letter Supporting Back Pay for Federal Contractors (2/4/2019)
AAPD joined a letter supporting efforts to secure back pay for employees of federal contractors who were unpaid during the recent government shutdown.
- Letter Supporting the Raise the Wage Act of 2019 (1/16/2019)
AAPD joined a letter supporting the Raise the Wage Act of 2019, which would sunset the ability of employers to pay workers with disabilities a subminimum wage through certificates issued by the U.S. Department of Labor.